UPDATED: 8-12-2014
It been months and months it looks like medical won't cover my KAFO's!!!!! (read below to find out about the story of my wanting KAFO's):
March 21, 2014 I
have some very very exciting news! Yesterday I went to UCDavis to see
my CMT specialist to show them some changes I have been making and some
changes I want to make! So around 6-7 months ago something came into my
life that changed everything! So my wonderful friend Debbie gave me her hot-tub that they never used hoping it would bring me some comfort. Well up until that point (for over 2 years) I
only could move my legs on my bed, but then when this warm water came
into my life, I was able to start moving my legs all the time and Brandon
and I started a stretching routine for me that I would do a few times a
week in the hot tub, so now after that long time I started noticing
that I had much more control of my upper legs. So I started learning how
to drive again and on standing but I could not stand by myself. So I
went to my specialist and told them all about the changes and I told
them how much drive and fire I have in me to live, live life and to make
my situation better. So we talked all about it and.......there are
going to fit me with full leg braces so I can stand by myself (with a
walker and brandon's help)!!!!!!!!!!!!!!!!!!!! Its going to be a very
long process about 6 months but then I will be able to stand by myself
and just that act alone the doctors say will be amazing psychical
therapy. I am so excited to stand!!!!!! I can't stop smiling at the
thought of standing!!!!
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