Still working on the last angle!

This will be a very short post since I am still working on the final angle. You can read my last post to find out more about the final angle! I am up to 10 minutes at this angle! My goal for every angle is 20 minutes with manageable pain. Right now I am at 10 minutes with, on a pain scale from 1-10, a 7. I want to say a big Thank You to my best friend Misty who has been coming over a few times a week to do physical therapy with me, like she did on this day!

Stander at the Final Angle

I am on the final angle of the stander before it will be completely upright. This last angle is really difficult and causing me lots of pain while I am in it. So far the longest amount of time I have completed at this angle is 7 minutes. My goal for each angle has been 20 minutes with barley any pain before I move on to the next angle. So once I have been at this final angle for 20 minutes with manageable pain then I will be able to go into the stander completely upright. I want to thank everyone who has shown there support and compassion for me on this journey, words can't truly describe how thankful I am for everyone who is helping me through this! Thank you all for the love and support!

Dedication to my Husband Brandon

I want to take this time to write down what the world needs to know about my husband Brandon. First he is an amazing Father to our 10 year old daughter and we are each others soul mates. Now that you know that I can get into what this post is really about. Its about Brandon a young man, who in my opinion deserves the whole world to know how amazing he is. Brandon married me, a girl with a disease that he had never heard about, and to be honest I don't think him or me really understood what that meant for us as a couple. For the most part in the beginning, we both just did what we knew I could handle or how I could handle things. He pushed me around in a manual wheel chair whenever we went to big places like zoo's, theme parks, malls, ect. We knew that when a venture like that was done I would be in extreme pain and would need extra help for the next few days to come. But for the most part unless we did something like that, we both kind of forgot about the disease. As the years went by the disease started to affect me more and more. Brandon had to sometimes stay home from work to help take care of Jade because I couldn't move. Well in January 2011 (the story about what happened is in my blog) I became bound to a wheel-chair/power chair, I could no longer walk. This combined with all of the other difficulties this disease was causing me, weakness in my arms, hands and debilitating pain. My husband had to become my care taker. Now this is where I want to stop you, just take a moment and understand that, a young man had to stay home with his young wife to take care of her everyday. My husband did this without a second thought, after he heard what the doctors told him and what he was witnessing, he knew what he had to do. For the past almost 4 years since our lives got turned upside down at such a young age, Brandon has always taken care of me, showed me love, and the most important thing compassion!! What man out there can stay home with his young wife everyday, watch her suffer in extreme pain day in and day out for 4 years and never once not show compassion when she is hurting or needs help.
He doesn't have a dream job, a master's degree, a million dollars, a medal or a respectable title but in my opinion, in society's eyes he should be cheered for and praised, for what he does everyday! He has the hardest job in the world, watching his loved one suffer. Now I know I say thank you and how incredible you are everyday but today I chose to write it all down for the world to see! Thank you for being the most amazing man on this planet and thank you for showing me compassion everyday.

My life is truly wonderful, yes wonderful! I am so happy! Most people look at me a little off when I say how happy I am and how blessed I am. Just because my life is hard does not mean it is not blessed and filled with joy!

Physical Therapy LEG LIFT!

Today I did my physical therapy with my best friend Misty she has so much experience with this, I am so lucky to have her! We started with my stretches of course. I will show what my stretches are on another blog post. So after that we moved onto the LEG LIFT! Every time I do it, I am so shocked and proud of myself! Plus the reactions from Brandon, Misty and David are priceless! When I see and hear about there shock and excitement for me achieving this goal, it means so much! I am also so thankful for the amazing online support I am getting from everyone, it truly helps me keep going on days were I can't find the strength. I have one more thank you to give out, if you have read all my post you will know about my hot-tub and how I got it and how it really made this dream of mine possible in reality! Debbie, you have given me more then anyone ever could and the most special little man in my life and the hot-tub has helped me so much, much more then I could put into words. After I do my physical therapy, I get right into the hot-tub and it takes so much of my pain away! If it wasn't for it I would not be able to do the things I am doing today! Thank you again everyone! I CAN LIFT MY LEG!!!!

Biggest Achievement Yet!

Physical Therapy is getting more intense! Along with doing my stretches every time which already takes a lot out of me. I have started to add something new to my everyday physical therapy routine! I am laying on my back/sitting up a bit and lifting up my leg about 8in off the bed. I am holding each foot up for 20 seconds. Brandon's face when I first did it, well shock about covers it and then he just clapped! :) I groan and scream out a little bit during it, but I did it!!! It is my biggest achievement yet!!!!

Physical Therapy

 Besides working in the stander I have also been stretching everyday, that is extremely important in my physical therapy. The other day while I was doing my stretching I wanted to progress further. When I go to my specialist appointments there is many exercises that they have me do, so I wanted to start incorporating that into my routine. I did some of the exercise, then I wanted to push myself even further and that is when, twice with each foot, I raised it about 6-8 inches off the bed and held it for about 10 seconds!